Wednesday, October 31, 2012

31 for 21...Babies,Children, & Adults with Down Syndrome have value!



If, you couldn't tell over the past 30 days....
I love a child with Down Syndrome!

 Below is a link to a blog post sent to Arthur and I today by a very dear Brother in Christ. It is so worth reading, and praying for those who feel selective elimination of a baby with Down Syndrome is OK! We were presented a "choice" over 14 years ago whether or not we wanted to keep Jonathan or abort him...In our minds there was no question. Jonathan was a keeper just like every other baby!

No, you may NOT imply that about babies with Down syndrome.

 

Today was a full day and one that didn't allow for time on the computer until just now, so my final 31 for 21 post will not be today. Anyway, it's a post from the heart one that could be posted at anytime. So, even though tomorrow is the first day of November I have 2 more post to complete my Down Syndrome Awareness Month posts. Until tomorrow....

Tuesday, October 30, 2012

31 for 21....Day 30



Down Syndrome Awareness Month is coming to an end tomorrow! 
WOW, October just whizzed on by!
I'm so excited that I was able to blog each day, and I'm working on my final post tomorrow. My final post is a post I have been working on a for several days, one that has required extra thought...and prayer.

There were 170 other people blogging this month about 31 for 21, if you haven't had a chance click on the link below and drop by and visit a few other families who have a loved one with Ds :)



Grab This Button

Moore Family Film Winners


Congratulations to # 2....Rebecca R


Congratulations to # 11...The Lovelace Family

Please, email us at munckfamily @ att.net so we can send out your DVD, thanks!

For those of you still interested in the Moore Family Films, you have until tomorrow for a special deal.



Get any DVD for $10.00 thru the rest of this month!

Now if you want to view the films~NOW~ click on button below!


Happy viewing everyone!!!!

Monday, October 29, 2012

31 for 21....Jonathan & William

William & Jonathan in San Antonio, Texas...July 2012




I was ask this question in an Email from Mary..... Thank you for sharing the information about down syndrome with the readers.  Just curious, from what you know in your studies, has the ratio of children with this extra chromosome increased during recent years or stayed relatively the same? 


The blog post done on Day 24, it gave the statistics for babies born with Ds today. You can view that post HERE~

*The stats today are 1 in 691
Honestly Mary, I haven't followed the stats very well. I have over the years read several stats, but nothing that really stuck to memory. I have many books which were published at various dates and time, the oldest published back in 1963. Each book has it's own stats and findings. I'll give you a couple of stats, and say it looks as though from book to book the stats vary. The one thing I know that will never change in the world of Ds is that no matter how trying it can be physically and mentally....The rewards of having that person in your life who has Ds outweighs and struggles!!!

*Stats from 2003 1 in 900 births

*Stats from 1964 1 in every 800 to 1000

Thank you Mary for visiting our blog, and to everyone else who stops by.
Blessings~
Laura

Did you sign up for the GIVEAWAY, yet???


This giveaway will end TODAY at Midnight!!!!! The winner will be announced tomorrow!

So, if you would like to have one of these AWESOME films, hurry and sign up NOW.....

GO, to this POST to ENTER!!!!

Sunday, October 28, 2012

31 for 21...Shopping

On our way back from the conference we stopped by Bass Pro Shop, where Jonathan enjoyed a little guy shopping....which included lots of looking and touching. We purchased a few things, but I believe Jonathan thinks James made the best purchase. James bought a bag of sour gummie worms....to share, Yum!!!!

Saturday, October 27, 2012

31 for 21 ....Day 27

Today while sitting at the White Unto Harvest conference, Jonathan took a few notes and doodled. Most of the time Jonathan prefers to just sit, listen, and people watch :)

Friday, October 26, 2012

31 for 21...Abilities & Weaknesses

In life it often seem people look at all your abilities, then place value upon those abilities. I find this very sad, because those people just don't know what they are missing out on by not having an open mind to view that person in greater depth. From an outside view looking in it would seem that physically speaking Jonathan has more weaknesses than abilities....He can't ride a bike, his run is my fast walk, etc. 

Yet, there is one thing that he excels in and that is swimming! He swims like a fish and can hold his breath underwater as long as a Hippo :) OK, maybe not that long but a very long time! So, if anyone wants to race just let us know ;) We are so proud of his swimming ability, and his determination to overcome his fear of water!


Get to know someone who is a bit 'different' than you and look at their abilities, because I'm sure that have many. It will bless your life! 

Florida


November 2011



We are here....

And enjoying great teaching, some wonderful fellowship with friends, and some much needed family time!

Thursday, October 25, 2012

31 for 21 ....a traveling man

Jonathan just like the rest of our family.... he enjoys taking trips!

We are off...

Wednesday, October 24, 2012

31 for 21...Day 24

March 2012

How Common Is Down Syndrome?

One in every 691 babies in the the United States is born with Down syndrome, making Down syndrome the most common genetic condition. Approximately 400,000 Americans have Down syndrome and about 6,000 babies with Down syndrome are born in the United States each year. 


Now you can see how blessed we are to have Jonathan, not every family gets to have a child who was blessed with a little something extra! Having an extra copy of chromosome 21, makes Jonathan unique :)

Tuesday, October 23, 2012

Giveaway...2 Moore Family Films


These 2 films are a "must" see!




Be encouraged and inspired as the Mosses work together, play together, and pray together.  See for yourself how a Biblical vision of family life results in a strong family who loves each other and desires to glorify the Lord together.  This is their life...


The family today is in crisis like never before.  And sadly, we don't have to look beyond our own four walls to see the results.  Our families are falling apart.  

But, God's design for the family is quite different.

In Deuteronomy 32, Moses tells the people: Set your hearts unto all the words which I testify among you this day, which ye shall command your children to observe to do...for it is not a vain thing for you, because it is your life.  

In this film get a refreshing glimpse into the daily life of the Mosses, a Christian family training their children in the ways of the Lord.  Learn about:

  • Why they educate their children at home
  • Why Beverly stays home to care for the family
  • How George leads his family in Bible reading and prayer
  • Why they trust God for children after 6 c-sections
  • How God brought their family through a time of trial 
  • How brothers and sisters can be best friends


*Our view of the film.....
This film was extra special to us because we know the Moss family. We were blessed to have met them at The Baby Conference in San Antonio July 2010, and later we had them in our home for a visit. This film depicts the Moss family just as they are, a family who loves each other deeply and the Lord being the center of their lives. It tells of a family trial that faith in Christ got them through. We see the Moss family seeking to be a light for Christ in all they do.












About Children are a Blessing:
We live in a day when most people, Christians included, eagerly apply for what God calls a curse - debt - but never give a second thought to preventing or even destroying what God calls a blessing - children.

If we are to live our lives according to the Word of God, we must ask ourselves, "What saith the Scripture?" 

Join the Moore family in this timely documentary as they briefly expose the evil history of the birth control movement on the 50th anniversary of "the pill."  They transparently share their testimony of how God, in His grace and mercy, opened their eyes in spite of their own sinful beginning. Be encouraged as they casually answer questions often posed to large families. Then, experience the joy of Biblical family life as they anticipate, give birth to, and welcome their tenth child into their home. Most of all, be inspired to look to the Word of God for answers to everything in life, but specifically to see that Children are a Blessing.
*Our view of the film....
Our family found this film to be straightforward and on the mark Biblically. We came away encouraged and happy to see where the Lord is leading the Moore family. It shows that as a family they are seeking to follow Christ in all areas of their life, not just giving part of their family to Him but the whole. They heard the call of the Lord to lead them to put together this documentary to enlighten and bless others. We believe it is doing just that, and we pray that they continue to create such films for God's glory!


Giveaway Rules:
You can enter the giveaway up to 2 times.

1- Leave us a comment telling us which DVD you would like and why.
2 -Blog about this giveaway, come back telling us you did.

~Giveaway ends Monday, October 29 at midnight~ 

If, you just can't wait to view these awesome films, 
go check out the Moore Family Films website. 
This month they are running a great special.
Now if your really in a hurry to see the films you can download and rent them!
Check it our HERE~

31 for 21...His spot

This is what our family refers to as "Jonathan's Spot", it is his place of comfort. Jonathan tends to be very sedentary. His body may not be up and going but his mind never stops. When in his spot you will find him with his favorite things, his Magna Doodle and a book...any book he just loves books.

This picture was taken after lunch today, Jonathan was definitely in his element.

Monday, October 22, 2012

31 for 21 ....Day 22

Ds.....

DEFINITELY
SPECTACULAR

GIVEAWAY ....

IT'S COMING TOMORROW, YOU WON'T WANT TO MISS IT!!!!!!

Sunday, October 21, 2012

31 for 21...Made Perfect

Psalm  139:13-16
13 For You formed my inward parts;
You covered me in my mother’s womb.
14 I will praise You, for I am fearfully and wonderfully made;
Marvelous are Your works,
And that my soul knows very well.
15 My frame was not hidden from You,
When I was made in secret,
And skillfully wrought in the lowest parts of the earth.
16 Your eyes saw my substance, being yet unformed.
And in Your book they all were written,
The days fashioned for me,
When as yet there were none of them.

I love Psalm 139, David speaks of God's ~perfect~ knowledge of man. David leaves nothing out when talking about what God knows of him, from forming him in the womb to each and every thought or action.
  
Verse 13-16 really struck me, I thought The God we serve knew perfectly well who he was knitting in my womb when Jonathan came to be. God created Jonathan, he is fearfully and wonderfully made! Jonathan having Down Syndrome wasn't a mistake, or an Oops...nope he sure wasn't! Humans aren't mass produced on an assembly line where there are often flaws and errors. No, we were created by "The Creator" of Heaven and Earth, who has an incomprehensible eye for detail and perfection. In the worlds eyes Jonathan may look as though he has a defect. When I look at him I see a handcrafted treasure, because I know from whom he was created! 

Thank you Lord for giving us Jonathan, he is a blessing!

Saturday, October 20, 2012

31 for 21....Bonds of a lifetime

Rebekah 4 yr, Madison 2 yr, & Jonathan 12 months

 These things I command you, that you love one another.
John 15:17

Friday, October 19, 2012

31 for 21....Jonathan & Elizabeth



(Jonathan and I in San Antonio, TX  this summer)

To him I'm Sissy and to me he's Johnny. We are only 6 years apart...yet the age gap seems much larger. I don't remember much of when Johnny was born. My parents took time to share with us how Jonathan was going to be different. God had a different plan for Jonathan. As a a six year old I was worried about little Johnny. I didn't like seeing Johnny all tied up with tubes and being taken away by nurses. I didn't like leaving Mom at the hospital, but I was glad she was there to stay with Johnny. Over the years Jonathan has grown and matured. He was always like the sunshine. His baby face would light up like the sun and I wish I could go back and hear his baby laughs. He still has that sunshine to him and he still laughs til he cries :). I'm glad God created Jonathan differently. We were all created for a purpose and we all have a calling. I know Jonathan is fulfilling his heavenly calling everyday. In his 14yrs.of life He has blessed mine daily. It's easy for me to feel sorry for Jonathan. I know there will be a lot of things in life that he will never get to try out or do. Yet through him I am reminded that joy does not come from the things that are temporary but the things that will last.
Johnny through my eyes...
Johnny is a hard worker. He loves to fold clothes and help out in the kitchen. He enjoys working outside, especially when a wheelbarrow is involved. He likes drawing people and writing the alphabet. Johnny is a little fish when it comes to swimming. He is a big music fan. In the car you might hear him singing along (in his version) as he shakes his index fingers. Johnny loves food! Any time we pass a restaurant he asks if we are going to eat there. When he walks through the kitchen he will pat his tummy and say "mmm smells good!". Johnny loves little children. He is very good with babies. I love to watch him play with Mary Ann. Johnny is big on giving hugs and shaking peoples hands. He is very outgoing and enjoys meeting new people. He also likes to introduce any family members that may have not met someone before. Johnny loves birthday parties. Johnny is a cut up and likes to tease. My favorite thing that Johnny does is pray. From the time Johnny could speak he would raise his hand to pray at bedtime or if it was an open floor to pray he would jump in. We and others can't always understand what Johnny is saying. It's when He's praying that I know his Ceator hears every word clearly and knows exactly what my Johnny is saying!

I could go on and on about Jonathan and the blessing he is to me and my family. He truly is special, I'm thankful he's my Johnny and I'm his Sissy.

"And God will wipe away every tear from their eyes; there shall be no more death, nor sorrow, nor crying. There shall be no more pain, for the former things have passed away." Then He who sat on the throne said, "Behold, I make all things new". And He said to me, "Write, for these words are true and faithful." Revelation 21:4-5

"He who overcomes shall inherit all things, and I will be his God and he shall be My son.
Revelation 21:7

Elizabeth

Where will HE lead me???

Wesley



Where in life will Wesley go? 
What profession will he have?
Will he marry or have children?

For a small boy these are such "big" questions,
yet, there is One who holds all the answers!

So, we as parents pray...
teach and read the Bible to Wesley....
then, allow the Lord to do the rest!
 
 

The Lord has Wesley's future in His hands....
 For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope. 
Jeremiah 29:11



No matter where Wesley is on this earth, may he be about the Lord's business... 

The Great Commission   
Then the eleven disciples went away into Galilee, to the mountain which Jesus had appointed for them. When they saw Him, they worshiped Him; but some doubted. And Jesus came and spoke to them, saying, “All authority has been given to Me in heaven and on earth. Go therefore and make disciples of all the nations, baptizing them in the name of the Father and of the Son and of the Holy Spirit,  teaching them to observe all things that I have commanded you; and lo, I am with you always, even to the end of the age.” Amen
Matthew 28:16-20  



This blog post came from drafts, it was dated January 24, 2009!!! Not sure why I never posted it. Wesley was 22 months old at that time.  


Thursday, October 18, 2012

31 for 21...Day 18

Joyous
Observant
Neat
Able
Tender-hearted
Helpful
Achiever
Noble


Be glad in the Lord and rejoice, you righteous;
And shout for joy, all you upright in heart!

Psalm 32:11

Wednesday, October 17, 2012

31 for 21...Toys

Today I want to share with you links to 2 companies that we have purchased many products from over the years....



Beyond Play offers you the most extensive selection of products for young children of all abilities - from infants and toddlers to children in the early elementary grades. They carry a wide selection of fun and educational products in all areas of child development, as well as specialized products for early intervention and special needs.

*This is a catalog store only, they ship quickly and have good customer service.




What is the Toys"R"Us Toy Guide for Differently-Abled Kids?
As a company that loves all kids, Toys"R"Us, Inc. has a long history of supporting the special needs community. For nearly two decades, we have published the annual Toys"R"Us Toy Guide for Differently-Abled Kids, an easy-to-use resource featuring specially selected toys that encourage play for children with physical, cognitive or developmental disabilities.


What does "differently-abled" mean?
We use the term "differently-abled" to stress that all children have unique skills and abilities.


Why was the Guide created?
Toys"R"Us founder Charles Lazarus heard from customers and store employees about the challenges of finding appropriate toys for the special needs children in their lives. As a result, in 1994 Mr. Lazarus spearheaded the creation of the Toys"R"Us Toy Guide for Differently-Abled Kids. Since then, Toys"R"Us, Inc. has published the Guide every year, distributing it in stores and, since 2006, making it available online.


*Toys R Us who doesn't like Toys R Us? This catalog is wonderful, the products can be purchased in store or online. Click the link above and sign up to have the catalog mailed to your home, or drop by a Toys R Us, and pick one up at the customer service desk.


~We will receive no compensation for recommending these companies to you, we just wanted to share~

Tuesday, October 16, 2012

31 for 21...A few facts

 When Was Down Syndrome Discovered?

For centuries, people with Down syndrome have been alluded to in art, literature and science. It wasn’t until the late nineteenth century, however, that John Langdon Down, an English physician, published an accurate description of a person with Down syndrome. It was this scholarly work, published in 1866, that earned Down the recognition as the “father” of the syndrome. Although other people had previously recognized the characteristics of the syndrome, it was Down who described the condition as a distinct and separate entity.
In recent history, advances in medicine and science have enabled researchers to investigate the characteristics of people with Down syndrome. In 1959, the French physician Jérôme Lejeune identified Down syndrome as a chromosomal condition. Instead of the usual 46 chromosomes present in each cell, Lejeune observed 47 in the cells of individuals with Down syndrome. It was later determined that an extra partial or whole copy of chromosome 21 results in the characteristics associated with Down syndrome. In the year 2000, an international team of scientists successfully identified and catalogued each of the approximately 329 genes on chromosome 21. This accomplishment opened the door to great advances in Down syndrome research.


How Common Is Down Syndrome?

 One in every 691 babies in the the United States is born with Down syndrome, making Down syndrome the most common genetic condition. Approximately 400,000 Americans have Down syndrome and about 6,000 babies with Down syndrome are born in the United States each year.




What Impact Does Down Syndrome Have on Society?

Individuals with Down syndrome are becoming increasingly integrated into society and community organizations, such as school, health care systems, work forces, and social and recreational activities. Individuals with Down syndrome possess varying degrees of cognitive delays, from very mild to severe. Most people with Down syndrome have cognitive delays that are mild to moderate.

Due to advances in medical technology, individuals with Down syndrome are living longer than ever before. In 1910, children with Down syndrome were expected to survive to age nine. With the discovery of antibiotics, the average survival age increased to 19 or 20. Now, with recent advancements in clinical treatment, most particularly corrective heart surgeries, as many as 80% of adults with Down syndrome reach age 60, and many live even longer. More and more Americans are interacting with individuals with Down syndrome, increasing the need for widespread public education and acceptance.


All information taken from the National Down Syndrome Society website

Monday, October 15, 2012

31 for 21...Day 15

Taken from drafts, thankful now I put a few 31 for 21 items in drafts!



5 years old




Today having a child with Ds isn't like it was years ago, there are so many resources out there to help the parent and child. Below is the link to National Down Syndrome Society, their mission statement and vision.

ndss
National Down Syndrome Society

Mission

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Vision

The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

YIKES, Oh NO!!!!

I have officially maxed out my space on google and blogger....SIGH******

So, that puts a damper on my post, because really, who likes a blog without pictures???
NOT ME...I love to read blogs with pictures, guess that comes from reading books to small children daily for the past 20 years! In a childlike way, pictures are a "must" to make my post complete. That being said today we were going to host a giveaway, one that we are very excited about! 

Not only do we have this giveaway, we have a birthday this week, and 31 for 21 which will have to be posted, yet won't be accompanied by a picture.

The blog goes on, BUT the giveaway is delayed until I can get pictures to post on the blog :( 
I'm hoping by tomorrow the problem will be fixed?!?

Until then it will have to wait....waiting, waiting, waiting......



knowing that the testing of your faith produces patience
James 1:3

Sunday, October 14, 2012

31 for 21...training

1 year old
Train up a child in the way he should go,
And when he is old he will not depart from it.
Proverbs 22:6 


 From day one we began to train/teach Jonathan.
His training wasn't just the normal baby stuff, it was way more in depth. 
We had to train him how to suck, how to control his arms, 
and the list went on and on....
At times it seemed never ending.
With lots of prayer, support from family and friends, early intervention,
and leaning on the Lord's strength we wouldn't have been able to train/teach Jonathan.

This is one of the resources we used to help us as we trained/taught Jonathan




 The book is 
this link will take you to Amazon to view the book.

In Jonathan's early years this book was so helpful to us, 
as we had had 4 children but to us children just grew and developed...
we had no idea that for some babies growth and development doesn't come natural.
So, right along with Jonathan Arthur and I had LOTS to learn. 
We have moved on in most every area,
 Jonathan still has a few gross motor skills that haven't been perfected.
We are still have much to teach Jonathan, 
and like Jonathan Arthur and I are learning as we go.
 

Saturday, October 13, 2012

31 for 21...just one of the boys

Skeet Shooting....

Jonathan throwing the clay pigeons...
The safe zone, and viewing area :)
Today was a guys/ boys day out, for a bit of fun at the farm. Arthur, all the boys, our store intern Joe, and Uncle Mike had a day of skeet shooting....the older shooting, and the younger throwing pigeons. Uncle Mike treated the guys to boxes of clay pigeons, yummy hot dog roast for supper, and great memories made! 

Jonathan is and was just one of the guys today, Ds doesn't hold him back nor does it define who he is.

Friday, October 12, 2012

31 for 21...October 2002

Jonathan 4 years old

Thursday, October 11, 2012

Jonathan's 14 Birthday----31 for 21

Jonathan had a sweet treat of a birthday party.....

The theme was based around Jonathan's favorite game....

CANDYLAND

We had a mix of candy.... hot, sour, and sweet!


14 years old!!!!!



Jonathan loves birthday parties, he was thrilled that this one was for him!

(William made the poster that is over Jonathan's head, he copied the characters off the Candyland game.)


A whimsical tree with a Gingerbread man topper, sparkly silver ribbon, turquoise lollipops, and sheets of candy buttons.


~This was one happy young man~

Jonathan with his dinner partner Ruth Ella....

On the Menu:
  • Vegetable Lasagna
  • Salad w/Lemon Poppy Seed dressing



Present time, what he had been waiting on....


So much fun.....


Jonathan being his playful self...such the teaser!

Anyone for a game?

Or maybe a big slice of cake?

We chose to light the 14 candles....

Sing 'Happy Birthday'....

And make a wish and blow......

It was a wonderful birthday celebration...lots of sweets which cause some to make silly faces :)

Speaking of sweets we had a bunch of candy left over....but all of this candy doesn't compare to our "Sweet Jonathan"!


We thank the Lord daily for giving us Jonathan to love and be apart of our family!




“The Lord bless you and keep you; 
The Lord make His face shine upon you,
And be gracious to you

 Numbers 6:24-25